Brinson has moved on to Neocate (easier to digest than milk, supposedly). She has been on it before and worked up to 12cc per hour. Right now she is still working to maintain 2.3cc per hour with the Neocate. She worked on 9cc in her belly all night and finally finished it so they started the feeding pump up again this morning. She will not do bottles until they are satisfied with more cc and Brin has a swallow study. And we won't do bottles until after CPAP, so it will be weeks before that happens. Also it takes a bit more energy to process Neocate vs pedialyte. So only time will tell.
As for the nitric, they are weening very slow and are not planning to change the CPAP settings until the nitric is gone. So every other day we go down 1 point. When we get to 5 we will go slower. Today we just moved to 8ppm. Also at 5ppm, they plan to do another picture of her heart to make sure everything is copasetic.
Prayers and thoughts for our Kenster
2 days ago