There were 4 major obstacles we have had to deal with at home: 1) Lungs/Oxygen - needed all the time 2) Ostomy - Surgery Schedule for Oct 2nd. 3) Feeding/NG Tube - Brinson is being feed through a tube, ECI and the doctor are establishing a plan. 4) Medicine - most meds will slowly drop off as she gets bigger
Brinson passed her Sleep study with flying colors and requires No Extra Oxygen. WooHooo!!!!
The only downside is Brinson can find her NG tube very quickly and is already honing in on how to get it out. Can you say "MORE TAPE"