Yesterday Brinson got flipped over and we were looking at the back of her head. Not very exciting....but her eyes are open. So what is she looking at. So I decided to look around back to see what she was looking at.
Well I would like to think she was looking at me.....see what you think.
The movie is so funny because she is sucking so hard. Lisa said she did this a lot while holding yesterday. I guess practice makes perfect.
Yesterday they decided they were going to try to start weening Brinson more aggressively off the vent. So last night they made a rate change on the vent from 35bpm to 32bpm. As long as she tolerates and her blood gases are pretty good they will continue to ween. This morning she is at 32% O2....which is good.
Also they started Brin on another diuretic because her lungs continue to be hazy.
They also are working her up for cor pulmuonale. She does not have symptoms, but it is standard procedure for a baby who has been on oxygen for 2 months.
Over all things are going well. She is growing and her lungs are stable.
I just wanted to give a big hug, kiss and thank you to Brinson's Auntie KD and all her friends who did the March of Dimes walk this past weekend. She told me how amazed and touched she was at all the people she saw from The Women's Hospital (where Brinson is).
Ned and I are so grateful to everyone who is taking this journey with all of us. And when I saw this picture of the teeshirts that KD's friend made for their walk, I cried. We are so sad that we will never get to watch Cooper grow up. Most of the focus is, of course, on Brinson at this time. However, he will always be our little boy and Brinson's Angel. We can't wait until she is old enough to hear the story of her courageous big brother. He also will have his place in her nursery with her.
Much love to all of you for everything you do and have done for our family. We are forever grateful.
Lisa was able to hold Brinson for over an hour today. She did pretty well. By the end of holding she was sound asleep. And when she was moved back to the isolette.....she remained asleep.
Brinson loves Mommy.
BTW, Auntie Tiffani had a surprise for us this afternoon. They lowered the PEEP on the respirator. The PEEP has something to do with the amount of air pressure. Needing less pressure is a good thing. Tomorrow she has a blood gas to determine how well she is doing on the respirator. Keep your fingers crossed.
Over the last few days we did not hold Brinson.....until yesterday. It was very nice to get her back in our arms. She did pretty well. Her O2 is anywhere from 28-36%. She will get labs today (Sunday) to see how well she is doing (CO2, PH...etc)
She also gets weighed and measured tonight. Mommy and Daddy guess is she will be 2lbs 12oz or 3 oz heavier.
Her skin continues to peel. Look at those crusty eyebrows.