The bad news is Brinson is still having to be stimulated for not breathing. But the good news is since the pulmonalogist and cardiologist consults they believe she does not have a serious heart problem ie no cor pulmonale. YEAH....what a relief. She still has ASD and we might have to deal with that....but not now.
They are thinking pulmonary hypertension and airway issue. An Ear Nose and throat guy is coming in for a consult today or tomorrow.
Her oxygen requirements are still high because of the unknown problem. They think her gut is ok, so they are going to try some formula on Monday (we think)
So we are narrowing down the possibilities.
Daddy has the day off today...yeah! That means more time with Brinson.
Mommy had Cooper next to Brinson yesterday while she held her and she felt so much better afterwards.
Let me tell you it is scary listening to all the bad possibilities and then feel so paralyzed....not being to help our daughter.
Let's just say it has been a long week and we are glad things seem to be moving in a better direction (forward and not stalemated)
Thanks again for all the nice comments, prayers and thoughts....please keep them coming and I will continue pictures and videos of our little princess, Brinson!
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1 month ago