Lilypie Kids Birthday tickers

Lilypie Kids Birthday tickers

Saturday, June 27, 2009

Mini Update

I got a call yesterday from the Endocrinologist. Brinson's GNRH test was positive so she does indeed have precocious puberty. They are going to do a brain MRI to "rule out tumors etc". Gee, thanks....and right in time for the weekend....thanks for scaring the &*%$ outta me. The most common cause in girls is ideopathic, so that makes me hopeful. With everything she's been through, it just worries me. They will have to sedate her for the MRI, so Im hoping like hell that MAYBE it can be oral and not IV medication. The horrors of her last lab visit are still haunting me.
The patching on the eye is something else. Poor baby. She hates it. She falls over when she crawls (not always) and last week she fell over from standing. She gets really whiney and for the most part is always trying to get the patch off. We are switching between a sticky patch and the one that has the strap. She has a little irritation on her skin, that's why we're doing that. I'm not sure we will be taking pics of her in the patch. It's just not pleasant for her. Daddy puts it on in the morning before breakfast and the last two days she won't even look up at us. She just looks down at the high chair. Her head tilt is also back. I'm sure she's trying to compensate for the bad eye.
I sure hope the patching is working and that she's not going thru all this for nothing.

5 comments:

Meme said...

Brinson is very strong and will get through this like all the other tests she has had to endure...I send love and prayers to you all during this stressful time...I will be sitting on pins and needles with you...Give her a big kiss from Meme...

The Baldwin Family said...

Poor Brinson! Hopefully the sedating medications are oral! We'll continue to include Brinson in our prayers (and her mommy and daddy too)...we have faith that she will have the best possible outcome. Love you guys!

Anonymous said...

My thoughts are with you all.... Brinson (and you) has been thru much... but hopefully this is just a small bump...
Love,
aunt b

Sara, Dan, & Maggie Daley said...

What can I do to help? I'm praying. You KNOW I understand how you feel. And I KNOW you understand how I feel. And sometimes that's all we can do...
Love you guys!
~Sara

Michele said...

Maaaan....does Brinson ever catch a break?! Poor little girl. My prayers are with her and you! Like other people commented...she is a little fighter, she will get through this! You hang in there.
((((((((BIG HUGS))))))) and prayers coming your way!