It's official! Brinson saw the GI doc Dr. Reid today. She is happy with Brinson's progress without the tube and we have her blessing to leave it out. I was almost speechless. We are also doing a few more things...1. Weaning her off the Bethanecol is the first step, then we will work on the Prevacid. and 2. We are starting the transition from Neocate to Pediasure starting on Monday. Time will tell if she will tolerate both changes.
She has also started meats and pasta this week. So far, so good.
I will be honest and say that this is all completely out of the blue. I mean, last week we were bitchin about the NG tube, and today we are celebrating. I don't know what happened, or what changed, but this was all Brinson. It was nothing we did. I'm learning as we go, that things tend to change suddenly. One day she's not sitting, the next day she is. Same with the eating amongst other things. *shrugs*
I'm still apprehensive, and I know there will be "bad" days. Dr. Reid says as long as its not consistent we are not to worry. I reluctantly have more NG tubes put away...just in case. I hope we won't need them.
The kids and Kenny playing around
3 months ago