There were 4 major obstacles we have had to deal with at home:
1) Lungs/Oxygen - needed all the time
2) Ostomy - Surgery Schedule for Oct 2nd.
3) Feeding/NG Tube - Brinson is being feed through a tube, ECI and the doctor are establishing a plan.
4) Medicine - most meds will slowly drop off as she gets bigger
Brinson passed her Sleep study with flying colors and requires No Extra Oxygen. WooHooo!!!!
The only downside is Brinson can find her NG tube very quickly and is already honing in on how to get it out. Can you say "MORE TAPE"
9 comments:
WHOO HOOO! Yay Brinson! Congrats on "passing" the sleep study test!
Gosh, I am so delighted... I am speechless. What great news. With surgery scheduled... the other obtacles should be on the way out too.... YA HOO...
This is wonderful news..
Thanks for a great Monday!
Love ya
Aunt Barb
I can't express enough how happy I am for you and Ned and for Brinson. I bet she feels better without that oxygen. Prayers continue for everything else.
Love
Julie
Yeah Brinson!! By the way, has anyone told you lately how beautiful that smile of yours is?
Yeah Brinson!! Keep the good news coming.
She has the cutest cheeks....you just want to squeeze them!
kristi
Yea Brinson.. You go Girl..What wonderful news!! Wendy Sullivan
Great news about the sleep study.
This is just fantastic. Everyday gets better and better.
Prayers are still going strong, and we know God will be with you on the 2nd.
Love MSones
She is so perfect. I can't wait till the day I can hold and kiss her
Congrats, Brinson! She and Noah can race to see who can pull out their NG tube fastest!
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