Whew!!!

We have poop. Brinson is doing great. This afternoon she has been awake. I even got to dress her in an independence day outfit.

Her wounds from surgery look very good...healing nicely. She is down on her oxygen. And they will try to feed her on Monday, which is awesome.

We had a train on grandparents and parents vying for Brinson's attention.

All the thoughts and prayers are working. Thanks million!!!

Brinson having a better day

Brinson has been getting more rest, not just drug induced. That is very good. Otherwise we have a cranky Brinson.

The line is a success, which is very good. Less sticks per hour is always a good thing.

Central line is in!!!

Dr. Minkes put in a subcutaneous central line without a tunnel. This means a smaller incision. He thinks we just need a few weeks till we ramp up to full feeds.

We have not gotten to see her yet because of 2 other procedures afterwards.

New IV game

<----Photo is from June 29th (Day before surgery) Look at those huge cheekies!!!

Brinson has been playing the new IV game about every 2-6 hours since the central line has been pulled. She has been blowing through IVS because the volume is so high and her veins are just not that great.

They tried a PIC line this morning but were not lucky. They are likely going to do a another central line today. This will require a surgeon and going to OR.

Brinson has been progressing on the vent because her blood gases have been going well. She is now on a rate of 20-25bpm. They are preparing her for CPAP. The vent causes damage and the sooner you get her off the better. It is a balance and they do not want to push her too hard....she is still recovering from the surgery. Also her O2 requirements are still quite high at 84%...but have been as high as 100% because of her pain which has caused severe de-saturations and not breathing episodes. They think her pain management is under control....what a relief. The last 2 evenings we have been watching her grimace and cry.

BTW Please add Noah to your thoughts and prayers list. He has 2 infections as well.

Brinson relaxed

I found Brinson much relaxed today. Her eyes are open and she moves a bit...but mostly she is relaxed with morphine on board.

The belly is swollen but that is to be expected. Overal she is doing ok.

Nitric will be weened off when she goes to CPAP.

Blowups of Brinson bits

Surgery complete

Brinson did well. She had 2 strictures beyond the original site. The Doctor took 1 out and will do the other in 3+ months. Hopefully we will be H_ _ _ by then.

We don't say the H word any more.

Surgery today

Brinson is going to have surgery around 2pm today. We had a priest come by and give her extra prayers this morning.

They are pulling her central line as well. The bugs stick to the line so that is common to remove it. The problem is you need at least 2 new lines for meds and blood. Usually Brinson has trouble keeping those longer than 1-2 days. So if she starts to run out she will probably get another emergency central line.

Bigger belly

Much bigger belly today. The urgency for surgery is high not necessarily for the belly size but for the infections status. It will likely happen on either Monday afternoon or Tuesday. Brinson is defintely more comfortable with morphine on board and she is getting rest. Nana, Grampa, and Meme are visting today.

Keep the thoughts and prayers coming.

Hopefully feeling more comfortable

Brinson was put back on the respirator. She has been under discomfort for a while now intermittently but early this morning they decided she needed morphine. You cannot be on morphine and be on CPAP at the same time so back on the vent.

The surgeon also came by and examined Brinson and decided something was probably going to happen tomorrow and Tuesday (meaning surgery).....depending on the status of her infections.

Everyone is headed to the hospital right after lunch.